Will I ever be normal again?

This is what Trey asked me last night. I wanted to say no but not because of his arthritis, I wanted to say no since he is now a teenager. Ha. A hard question to answer. Are any of us normal? Probably not. I know that because of circumstances in my life, I hope I don't go back to being normal. I hope that I am changed and that my new normal with Christ is much better. I don't know what the future holds for Trey, I only know who holds it and I know that HE is in control of our normal not me.

Be joyful in hope, patient in afflictions, constant in prayer. Romans 12:12

Fire FIre Fire

That was what Trey said all night long last night. He said his ankles felt like fire. We (Trey and I) were up most of the night with the increased pain. Please continue to pray for the medication to relieve some of the pain. He is going to sit out of athletics today and see if he can get some relief. Hard to watch your child in so much pain. I told him my heart hurts as much as his ankles hurt to watch him in pain. Thanks for your prayers.

An event like no other

Not sure how to turn the picture but you will still be able to see. You can imagine my face after seeing the total amount of the bill yesterday at the Dr's office. I am hoping for no more events like this one. When I saw the total I thought for sure that was a diagnosis code but I was wrong it was yesterday's charges. WOW!!!!!!!!!!!

Cell project

Trey had to create a cell that was edible. Quite a treat for a boy to be creative this way. The final product.

Caridologist

Travis had his appointment today and the Dr said that there was nothing physically wrong with his heart, not that we expected that. His murmur is still there and not surprised at that either. He has an Event monitor for a month and we are hoping for an uneventful event monitor. Everytime he feels the rapid heart rate he is to push the symptom button and then we call in the results. Hoping it is nothing.Thanks for your prayers.

Travis' heart

Travis has had some rapid heart rate issues and tomorrow we will see the cardiologist to see what's going on. Like I needed another medical issue this week. Trey is still very stiff, hurting more in the morning and evenings. Continue to pray for the medication to work and for his attitude and heart to be softened. I know he is hurting and it breaks my heart. I don't want him to be angry and question why me? Pray for Robert and I and we continue to process this journey.

Trey's appointment

We had a great appointment on Wed in Houston. The dr there was so great and very detailed. She checked Trey from head to toe and was very concerned about his ankles. He has no lateral movement in either ankle. She is ordering an MRI and more blood work. The diagnosis is still arthritis we just don't know the specific type of arthritis yet. He is on a new anti- inflamatory medication and will be getting orthotics for his ankles and feet. She said that she could get Trey to about 50% but that there would be pain and when he has a flare up it would be less than 50%. It is discouraging however, just another challenge. Our prayer right now would be for medication to relieve some of the pain, if it does not, he will have to stop all activity. This would not be great for an active boy. Thank you for all your prayers and emails. Your support is amazing. Will keep you posted as we learn new information.