Huge Praise and MORE prayers

The insurance company finally agreed that Travis does need the IGG medication. So glad that they get to decide that and NOT the doctor. REALLY.... all that to say now the home health agency walgreens home infusion company has to call the insurance now and get approval on the medication. Yes you heard me right..... they have to call since they will be the provider of the medication. URRRG... praying our doctor got it all resolved and that they will get this approved no problem. After we get all that approved, we will have their home health nurses come out and train me again on the medication. We have one dose for today so we will be doing an infusion this afternoon and then praying we are back on our weekly schedule. Travis has not been feeling great, just really loss of energy but no sickness. HUGE praise on that. Thanks so much for all your love, calls, texts and emails. WE love that we have so many friends praying for us. Will keep you updated when we hear any more details.

UNREAL

The insurance company no showed on the conference peer review call. How does that happen? Our dr is still trying to reschedule or talk to someone sooner than later. so WE continue to WAIT.....more details when I find out. Satan is at work for sure.

Still Waiting

Still waiting to hear from the meeting with dr and insurance company yesterday. Travis did not have a treatment this weekend so again, we pray for no germs to invade our family... Will keep you posted as soon as we hear any news.

Waiting....

Dictionary.com says wait is to remain inactive until a specified time or until an event occurs. to be ready...
Well we are waiting for the EVENT or infusion to occur. Still no word, the infusion company called today some confusion about if they even need pre auth or not.  So another day without an infusion and another day of wondering when or how this will go down. Please continue to pray as wait more and more. Travis is doing well in spite of it all and was thrilled to have 2 weeks off of infusions. Can't say that if  I'm honest, I didn't miss them either, only I know the possible consequences for missing the infusions. Will keep you posted as soon as we hear something. Thanks for standing in the gap for our family....

5-7 Business Days

REALLY.... 5-7 business days until the insurance will decide if they will approve the drug. Unreal that insurance has so much control...ugh like I said yesterday... can't wait to get to heaven and not have insurance and know I'm ok...
So more waiting, more praying and just plain more waiting....thanks for praying with us.

Wow where to start

Once again, I have gone far tooooo long without blogging. Where do I begin and what details do I include etc.... should have never started this blog thing as it's one more thing I might fail at.....
Travis... our weekly IV's are the normal for us but last week after the infusion Travis said mom you should look at my leg it's bad. Him being a little bit of a drama king, I said I'm sure it's fine. However, he persisted that it was really hurting... He was correct and he was having a reaction to the drug.... YIKES... based on the reaction, Travis cannot take that drug anymore. This week has been stressful in that we did not have an infusion on Sunday and are waiting to see what the insurance does from here.
The new drug must be approved by the insurance company, we are changing home health agengies and the new drug requires three sites instead of two. Travis is NOT thrilled with that at all.  To steal the words from our sweet friend Jennifer Lewis Clouse, this infusion infessed world is not our home.
Lots of moving parts in this crazy situation. Meanwhile, Travis did not receive any IGG this week putting him in danger of infections. We are STILL waiting on his IGG levels as the nurse fogot to put the test on the orders and then the lab had issues running the test. Again, I think God is protecting him in supernatural ways.  Please pray first for protection from GERMS, then for insurance to agree to new drug and for new home health agency. Will keep you updated when we know something.....
As I waited all week for things to happen I realized that I am not in control of any of this situation but yet I KNOW the one who is. Thank the LORD He has this covered. Every time I seem anxious, worry or fret about this, I remind myself that God is working out the details of all of this. Travis is NOT mine but HIS and he's got it covered. No dr, insurance, blood work etc is in my control but in HIS hands. Through all of this my temptation is to worry and wonder what if but I remind myself as I teach my kindergarten kids, He's got the whole world in HIS hands. Even Travis..... Harder to understand at times but waiting patiently and trusting in HIM as we wait for answers. Thank you LORD this is not our home, can't wait to get to Heaven without insurance and BE OK with that.
Thank you all for standing in the gap with us. I will keep you posted as soon as we know something.